We arrived at 8:30 and left at 10:30, although we spent an inordinate length of time waiting, waiting, waiting.
My sight is fine, but my eyes are not. The orthoptist (?)- Annie - said that my vision was 20/20 with just a bit of confusion between S and B. I should probably get my lens updated and have a largish pair of sunnies scripted too. Glare is not tolerated too well. The glare of a light shining in my eyes caused me to swear at the bloke. We were on first name basis by that stage.
There is a lot of expensive equipment in an eye surgeon's rooms. Annie measured my eyes and my glasses and then started to examine the tracking. That is when she went and got the surgeon, Brian. He did that thing with his finger and the lid of a blue biro - follow around the world, left, right, up down. Again and again. He did it so she could see the nystagmus. Then he went in with the microscope. Follow the yellow brick road again. And again. They looked in the eyepiece. Brian called Kirsten over to look in the eyepiece. I gather both extremities of my eye (they were looking into the left one, but I gather the right one is only worse) jigs around all over the place. This would explain why the end of a street looks like a mirage. This would explain why I cannot judge speed or distance when I am a pedestrian or a driver. It would also explain why I will never drive a car again. I had been trying to explain that I had to check things with my brain not with my eyes. Nothing is automatic any more.
Then he asked me to get up and walk over to Kirsten. I got to my feet and, as I have trained myself, paused for a second or two (but not three) to get control and to ease the ache from sitting that is in my groin. Brian asked me what I thought I was doing. I quipped/snapped that I was getting started! When I got over to Kirsten, he asked me to turn around and walk heel'n'toe back to him. Even looking at his face, I swayed all over the place and he caught me and stopped me after three steps. The same thing happened when he asked me to stand upright with both feet together. Simply cannot do it.
The problem lies within the brain stem. It is a wiring problem within the cerebellum. It is degenerative. I gather the neurologist will expand upon that next week.
Here are the symptoms: peripheral neuropathy, poor coordination and balance, eyesight difficulties, cramps in both legs but mainly the right leg, cramps in all segments of the arm, cramps under stress that envelope the left upper arm and chest wall that resemble angina (but are not angina because my heart is fine), cramps across the back of my shoulders, syncope caused by low blood pressure, vertigo.
That's enough to go on with.